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RettSyndrome news

Strollathon to raise funds for Rett Syndrome research

Hastings Tribune - Sep 8, 2017
With the event in Hastings for the first time, an organizer of this year's Nebraska Strollathon hopes to see a lot of money raised for Rett syndrome research. Dan Consbruck of Hastings, a co-chair for the 2017 Nebraska Strollathon, said the event could ...

Fox Chapel woman raising money for Rett Syndrome and "Love of Lily"

Tribune-Review - Sep 13, 2017
Fox Chapel resident Ann Fromm said the only thing she can do to help her ill granddaughter Lily, who lives on the west coast, is to raise money in hopes of finding a cure for Rett Syndrome. The neurological disease traps people in their bodies and ...

Stroll-a-thon in Millvale scheduled to help raise awareness about Rett syndrome

Tribune-Review - Aug 31, 2017
Dean's 14-year-old daughter, Cara, has Rett syndrome, a genetic neurological disorder typically diagnosed at 6-18 months of age, in which normal developmental skills like walking and talking begin to rapidly regress, leading to lifelong impairments, ...

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Rett Syndrome videos

What Is Rett Syndrome? | Child Psychology

Watch more How to Understand Child Psychology videos: http://www.howcast.com/videos/507734-What-Is-Rett-Syndrome-Child-Psychology Rett syndrome is a ...

Working to reverse Rett Syndrome

With a $750000 grant from Rett Syndrome Research Trust, Michael Green is working to reverse a debilitating neurological disease ...

Living with Rett Syndrome | Cincinnati Children's

http://www.cincinnatichildrens.org/ “With Gabby, if you are looking at her and she's sitting still you wouldn't think anything was wrong with her, but observe her for ...

Cammy Can-Rett Syndrome

Cammy understands everything around her but is not yet able to walk or talk. She is self-conscious of her assistive communication device but agreed to use it for ...

RETT: There is Hope (Full Movie)

The story behind Rett Syndrome is complicated. It involves a devastating genetic affliction that starts with young girls and includes incredible family dynamics, ...