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Cammy Can (Living with Rett Syndrome)


Cammy Can (Living with Rett Syndrome)


Cammy understands everything around her but is not yet able to walk or talk. She is self-conscious of her assistive communication device but agreed to use it for half of our interview. This...
 


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Rett Syndrome - causes, symptoms, diagnosis, treatment, pathology


What is Rett syndrome? Rett syndrome is a rare neurological disorder that mostly in young girls and causes severe impairments in their ability to talk, walk, eat, and even breathe. Try free...
 

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What Is Rett Syndrome? | Child Psychology


Watch more How to Understand Child Psychology videos: http://www.howcast.com/videos/507734-What-Is-Rett-Syndrome-Child-Psychology Rett syndrome is a very rare neurodevelopmental condition...
 

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Sophie's Story: Rett Syndrome


This is Sophie's story, a girl with Rett Syndrome. Rett Syndrome is a devastating neurological disorder. Rett children and families are supported by the Rocky Mountain Rett Association, which...
 

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An Actual Conversation With Maggie | Rett Syndrome


My daughter has Rett Syndrome. A loss of speech is a trademark of the disease. She used to be able to say up to 50 words. Now she can only speak with the aid of technology. Doing things...
 

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Living with Rett Syndrome | Cincinnati Children's


http://www.cincinnatichildrens.org/ “With Gabby, if you are looking at her and she's sitting still you wouldn't think anything was wrong with her, but observe her for one minute and...
 

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Working to reverse Rett Syndrome


With a $750000 grant from Rett Syndrome Research Trust, Michael Green is working to reverse a debilitating neurological disease http://www.umassmed.edu/news/news-archives/2014/05/UMMS-scientist-ai...
 

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RETT: There is Hope (Full Movie)


The story behind Rett Syndrome is complicated. It involves a devastating genetic affliction that starts with young girls and includes incredible family dynamics, groundbreaking treatment, care...
 

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Rett Syndrome Documentary


This video is about Rett Syndrome.
 

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Rett's Syndrome - Neurological Examination, Presentation and Parent Interview


MRCPCH Clinical Revision - more videos at http://mrcpch.paediatrics.co.uk Revise for your MRCPCH Clinical exam, with videos and high quality content created by the London Paediatrics Trainees...
 

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Rett Syndrome therapy


Abby V back to gait training therapy after almost a year following spinal fusion.
 

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Rett Syndrome: One brave little girl's battle with the rare disease


Imagine your baby girl is developing normally, then suddenly she starts losing skills. That's what happened to Rebecca & John's little girl Marlee, who has Rett syndrome. Watch Marlee's story...
 

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Atypical Rett Syndrome


Our 3 year old daughter was diagnosed with Atypical Rett Syndrome in May of 2013. This is her beautiful little life's story!
 

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Caleb's Story - Rett syndrome boy


Caleb has Rett Syndrome. He was just diagnosed in February 2015. He is one of only 7 or so known boys in the world with Somatic Mosacism MECP2 mutation causing Rett Syndrome. Caleb has the...
 

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What Is Rett Syndrome


 

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Walking with Rett Syndrome


Rett Syndrome forces many of those afflicted into a wheelchair. Maggie has always been a strong walker. She skips most of the time. But this year her balance has been affected and now she...
 

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How Mutations in the MECP2 Gene Cause Rett Syndrome


A paper was published on June 16, 2013 in Nature Neuroscience describing key steps in how mutations in the MECP2 gene cause Rett Syndrome. The paper describes two crucial domains in the protein:...
 

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Regression in Rett Syndrome


Rett syndrome is a unique postnatal neurological disorder that is first recognized in infancy and seen almost always in girls, but can be rarely seen in boys. Rett syndrome has been most often...
 

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Sierra's battle with Rett Syndrome


Sierra just turned 5 so I thought I would create this montage to document her struggle with Rett Syndrome. She is the sweetest little girl and has brought us so much joy! Please spread the...
 

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Olives Rett Syndrome Journey


Olives rett syndrome journey.
 

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A typical morning with Rett Syndrome


My mission is to spread as much awareness for Rett Syndrome as I can. This shows a typical morning for Angelina.
 

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Maja Rachwalska- rett syndrome


www.facebook.com/majarachwalska/
 

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Family puts Rett syndrome in spotlight


Rett syndrome often includes seizures, breathing and digestive problems.
 

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Olivia's life With Rett Syndrome


A few videos of Olivia's everyday life dealing with Rett Syndrome from ages 1-3. The symptoms she has include grinding of teeth, holding her breath, unable to walk or crawl, unable to have...
 

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Q:A: What is Rett syndrome? ǀ Blue Bird Circle Rett Center


Description: The Blue Bird Circle Rett Center at Texas Children's Neuroscience Center offers comprehensive family-centered care for Rett syndrome, a complex neurological disorder that primarily...
 

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Rett Syndrome - The View - January 28-2011


Rett Syndrome - The View - January 28-2011.
 

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Hope for Hannah & Gaby | Rett Syndrome Research Trust


A touching video featuring the Epstein and Valner families. The video, which describes some of the challenges of living with Rett, was shown at the Hope for Hannah & Gaby event in Beverly Hills...
 

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Cammy Can's Cinderella Story - Rett syndrome


2015 www.rettsyndrome.org/special-events/cammy.
 

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How is Rett Syndrome Progressive?


Read about what's going on at magnoliashope.com It's inconsistent. Sometimes it will look like plateau and sometimes it will look like a cliff. But sometimes you will be climbing that cliff...
 

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Rett Syndrome Segment | The TODAY Show 10.20.15


On Tuesday morning, October 20th, 2015 the Today Show on NBC aired a segment featuring The Bohn family along with Monica Coenraads, Executive Director of RSRT. In this short but touching segment...
 

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Living with Rett Syndrome: Emily's Story


Filmmakers: Ashkan Morim and Hayk Stepanyan.
 

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Live With Rett Syndrome


Rett syndrome is a neurodevelopmental disorder that is classified as a pervasive developmental disorder by the DSM-IV. Many argue that this is a misclassification just as it would be to include...
 

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Rett Syndrome | Through the Eyes of Sisters


This video looks at Rett Syndrome through the eyes of the sisters of Eva. Rett syndrome is a unique developmental disorder that is first recognized in infancy and seen almost always in girls,...
 

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Rett Syndrome Video.mov


This video, created in 2010, highlights the story of three families who have worked closely together over several years and together raised over $5 million dollars towards finding a cure for...
 




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